HD Australia

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 Post subject: HD is HidDen no more: England
PostPosted: Wed Jul 07, 2010 6:35 pm 
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Joined: Tue May 15, 2007 6:42 am
Posts: 872
Location: NSW
The guys in England have truly shown whats possible when everyone pulls together in the HD community.

They received media coverage on every major news station! Heres just a few.

[www.youtube.com] (ITV - Charles Sabine)

[www.youtube.com] (Channel 4)

[www.youtube.com] (Yorkshire News ITV - Nancy Wexler, Sarah Winckless, Tony Hadley)


And this is a youtube put together by a friend of ours Matt Image


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 Post subject: Re: HD is HidDen no more: England
PostPosted: Thu Jul 08, 2010 2:17 am 
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Joined: Sat Nov 22, 2008 12:19 am
Posts: 163
Wow, Michelle - looking at those youtube links - it does really make you think - would we here in Australia be able to all get organised and come together in one place at one time as a community and show that same dedication to spreading the message to government, the health system, clinicians, and the general public that HD is a disease that affects families, and that people with HD deserve to be treated with respect and their dignity maintained, and that we should all be working towards treatment and a cure, and treating those with HD with empathy and compassion. If only we could make those who are not affected realise the devastation that HD causes to families - would they understand and want to help...?

Thanks, Michelle, for putting those links on the forum.

sonnie


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 Post subject: Re: HD is HidDen no more: England
PostPosted: Mon Jul 12, 2010 9:55 am 
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Joined: Mon Oct 20, 2008 7:49 pm
Posts: 17
Location: Wangi Wangi NSW
Wow - amazing event

Thanks for posting Michelle

And there are possibilities in Australia - let's see what the future holds

Mark


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