HD Australia

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 Forum: General   Topic: National Conference Program and Registration Form

Posted: Wed Sep 08, 2010 8:14 am 

Replies: 23
Views: 698


Michelle,

I will text you tonight, I arrive around 4.30 and will be at the Edmondstone Motel. It's about 7 minutes walk from the conference centre. So if I don't see you tonight I will see you in the morning.

Deb xxx

 Forum: General   Topic: National Conference Program and Registration Form

Posted: Tue Sep 07, 2010 6:57 pm 

Replies: 23
Views: 698


I will take the photos so I don't have to be in any of them. Haha    A silly question, they do have soap in motels these days don't they? Also should I take breakfast - it said room only, breakfast sent to rooms. I'm wondering if that means you have to pay extra for breakfast or it is included? Mayb...

 Forum: General   Topic: National Conference Program and Registration Form

Posted: Sun Sep 05, 2010 6:30 pm 

Replies: 23
Views: 698


Daisy,   Carry a giant pole with a flag on it so if you do get lost you can slide out the pole and hold it high enough for us to see. Then we can head towards you and guide you back (so long as we know where  we're  going  http://www.hdaustralia.org/images/smilies/icon_lol.gif ). If ...

 Forum: General   Topic: Difficulty With Telephones

Posted: Sun Sep 05, 2010 6:26 pm 

Replies: 4
Views: 27


Thanks everyone,   Sonnie when I let it go to the answering machine I sometimes hear him say my name, other times just background noise. I went to see him today and the Nurse said he was wanting to call me again. I told him that when he calls he doesn't say anything but he didn't offer any solution ...

 Forum: General   Topic: Difficulty With Telephones

 Post subject: Difficulty With Telephones
Posted: Sun Sep 05, 2010 12:51 pm 

Replies: 4
Views: 27


Hi everyone,   I read where Michelle said her Mum would ring her all the time during the day which became very tiring and her husband would take some of the calls.   Well this is happening to me, the problem is that I answer the call and speak but for some reason Anthony doesn't respond. I call his ...

 Forum: General   Topic: National Conference Program and Registration Form

Posted: Fri Sep 03, 2010 11:27 pm 

Replies: 23
Views: 698


Oh Nay is coming? Nothing like thinking about it for a while before deciding  http://www.hdaustralia.org/images/smilies/icon_mrgreen.gif  am so glad Nay. WooHoo. Had my hair cut especially today in case you changed your mind - not that anyone will notice. Should have had it died gree...

 Forum: General   Topic: National Conference Program and Registration Form

Posted: Wed Sep 01, 2010 1:17 am 

Replies: 23
Views: 698


Excellent Daisy, what hotel are you booked into? I only posted my form off yesterday and I rang them first and they didn't say it was too late so I paid online for the dinner as well.

Looking forward to meeting you there.

Buddybird

 Forum: General   Topic: Gaps In Services For People With HD

Posted: Tue Aug 24, 2010 4:30 pm 

Replies: 13
Views: 131


Thank you all so much for helping, I really appreciate it.

I'm also sorry that there seems to be so much wrong with the system.


Buddybird

 Forum: General   Topic: Gaps In Services For People With HD

Posted: Tue Aug 24, 2010 10:38 am 

Replies: 13
Views: 131


Hi Sonnie,   No it's a general for Australia as it won't actually specify who the gaps are coming from, just what they are.   Please....fire away. We would be very grateful.   Now I have to work out how to do headers and footers, this will be fun. The information you give won't be disclosed from the...

 Forum: General   Topic: Gaps In Services For People With HD

Posted: Tue Aug 24, 2010 12:28 am 

Replies: 13
Views: 131


Hi everyone,   I have a friend doing Certificate 4 on Disability and she was lucky enough to get HD as her assignment, neither of us can believe out of 30 people she actually got this topic and I've helped her as much as I can.   What I would appreciate is if anyone can tell of any gaps in the servi...

 Forum: General   Topic: National Conference Program and Registration Form

Posted: Tue Aug 17, 2010 7:47 pm 

Replies: 23
Views: 698


Bruce,   Excuse me? You can pay to watch a video!!!!  http://www.hdaustralia.org/images/smilies/icon_rolleyes.gif As a school trip we went through on a tour and along the way the workers would pop a choc or lolly into a child's mouth. Now you watch a video, unreal. At the end we did ...

 Forum: General   Topic: National Conference Program and Registration Form

Posted: Thu Aug 12, 2010 6:22 pm 

Replies: 23
Views: 698


http://www.hdaustralia.org/images/smilies/icon_biggrin.gif  http://www.hdaustralia.org/images/smilies/icon_biggrin.gif  http://www.hdaustralia.org/images/smilies/icon_biggrin.gif  Yeehaw, I have booked flights (thanks to my Mum online), I booked my mo...

 Forum: Introductions and welcomes   Topic: Hello to everyone...

 Post subject: Re: Hello to everyone...
Posted: Thu Aug 12, 2010 6:15 pm 

Replies: 5
Views: 135


Hi Jodie,   You have brought up a point I had never considered before. If you have a child who is 50/50 chance of inheriting the gene then go through IVF to have a non HD baby - you would carry that guilt that you did for one what you didn't do for the other. I had never thought of that, just though...

 Forum: General   Topic: One Year

 Post subject: Re: One Year
Posted: Thu Aug 12, 2010 6:08 pm 

Replies: 5
Views: 209


Hi Daisy,   I can totally understand where you are coming from in thinking you are one day closer to the day symptoms start, I just have to say that finding out he is gene positive doesn't make the disease come any faster. As soon as you know it's like a waiting game, watching every movement and won...

 Forum: Introductions and welcomes   Topic: Hi My name is Kelly

 Post subject: Re: Hi My name is Kelly
Posted: Thu Aug 12, 2010 5:55 pm 

Replies: 18
Views: 242


Hi Kelly,   I just want to welcome you to the forum too. We didn't go through the testing phase like the others as when my 5yr old had an MRI to find out what was wrong with him and why he was having problems, it showed up there. So there was no counselling and I had to find out on the phone that my...
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