| Author |
Message |
Forum: General Topic: National Conference Program and Registration Form |
| michelle |
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Posted: Tue Sep 07, 2010 9:42 pm
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Replies: 23
Views: 697
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| Debbie I was thinking that exact same thing re: photos haha Yes Debbie they will have soap...and you might be able to grab somecereal at the shops when you get there...or they may do toast...or youcould grab something on the way to the conference! I fly out tomorrow night after work...If I can Ill... |
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Forum: General Topic: National Conference Program and Registration Form |
| michelle |
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Posted: Sat Sep 04, 2010 8:46 am
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Replies: 23
Views: 697
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| Hey Debbie really looking forward to seeing you http://www.hdaustralia.org/images/smilies/icon_biggrin.gif Debbie you should be fine through my talk...it goes for 45 minutes, so the only problem is you might fall asleep! Ive roped Nay into doing half of the talk http://www... |
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Forum: General Topic: National Conference Program and Registration Form |
| michelle |
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Posted: Thu Sep 02, 2010 6:32 am
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Replies: 23
Views: 697
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That's wonderful news Daisy...really looking forward to meeting you!
Also Debbie, Nay is coming too now! Last minute decision... so that's fantastic!
See you all there  Xx |
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Forum: General Topic: Gaps In Services For People With HD |
| michelle |
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Posted: Sun Aug 29, 2010 5:48 pm
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Replies: 13
Views: 131
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| Carls, your story really highlights huge gaps :( and the lack of understanding of NH's caring for people with HD. Unfortunately i think its often left up to families to educate staff, which isn't always received too well, and its sad when families already carry a huge burden. http://www.hda... |
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Forum: General Topic: HSG seeking input for survey on drug trials |
| michelle |
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Posted: Sun Aug 29, 2010 5:25 pm
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Replies: 0
Views: 40
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| HSG(Huntington’s Study Group) through its Project AWARE is seeking input from patients and families to gain knowledge about the feelings, attitudes and beliefs of those affected by Huntington disease in regards to drug trials. A link to this survey can be found on the following website: http&#... |
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Forum: General Topic: Gaps In Services For People With HD |
| michelle |
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Posted: Tue Aug 24, 2010 7:34 pm
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Replies: 13
Views: 131
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| Sonnie that is really sad...i know of another situation where a HD patient was put in a psych ward and told they could not leave until they got better http://www.hdaustralia.org/images/smilies/icon_sad.gif Its a really poor system to work with, and unfortunately what your family is... |
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Forum: General Topic: Gaps In Services For People With HD |
| michelle |
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Posted: Tue Aug 24, 2010 10:50 am
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Replies: 13
Views: 131
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| Sonnie, your situation sounds really awful, and totally inappropriate, do any services with a knowledge of HD contact the MH unit??? Debbie here is a few things from my experience over the last 15 years ⋅ No access to support/info/connections for us as kids/young people growing up cari... |
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Forum: General Topic: National Conference Program and Registration Form |
| michelle |
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Posted: Thu Aug 19, 2010 9:10 am
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Replies: 23
Views: 697
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Really looking forward to seeing you Debbie!  |
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Forum: JHD Topic: JHD youtube: featuring Kieran and Bailey |
| michelle |
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Posted: Thu Aug 19, 2010 9:05 am
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Replies: 0
Views: 87
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An inspiring youtube created to raise awareness and support for children living with Juvenile Huntingtons Disease. Theres some beautiful photos of Kieren and Bailey. Thanks for sharing them Debbie
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Forum: Introductions and welcomes Topic: Hi My name is Kelly |
| michelle |
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Posted: Fri Aug 13, 2010 9:53 am
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Replies: 18
Views: 242
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| Hey Kelly...sorry for the late welcome. Im glad these guys have welcomed you with open arms! http://www.hdaustralia.org/richedit/smileys/YahooIM/6.gif I hope coming here and talking helps...I was tested a few years ago, and did a sotry for Marie Claire about my experience if you ... |
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Forum: Introductions and welcomes Topic: Hello to everyone... |
| michelle |
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Posted: Fri Aug 13, 2010 9:12 am
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Replies: 5
Views: 135
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| Hi Jodie and welcome to the forum, I too can relate alot to your story and all the emotions and dilemmas that go along with HD. My mum had HD when i was growing up too, which you can probably read about all over this forum..lol... Im glad you have found the forum, and hopefully you can build a few ... |
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Forum: Fundraising & Events Topic: workshop with Jimmy Pollard 4th Spetember 2010 |
| michelle |
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Posted: Thu Jul 29, 2010 5:37 pm
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Replies: 0
Views: 52
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| Please find attached an Information Flyer for “A workshop with Jimmy Pollard” Please circulate to anyone you feel may be interested in coming along. Saturday 4th September 2010 9.30am — 4pm Conference Room Centre for Neurological Support 11 Aberdare Road Nedlands WA Jimmy Pollard MA holds a M... |
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Forum: Fundraising & Events Topic: Tasmania Newsletter June 2010 |
| michelle |
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Posted: Thu Jul 29, 2010 5:35 pm
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Replies: 0
Views: 26
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Forum: Fundraising & Events Topic: public lecture on Brain Degenerative Disease Research |
| michelle |
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Posted: Thu Jul 29, 2010 5:33 pm
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Replies: 0
Views: 24
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| Please find attached information for public lecture on Brain Degenerative Disease Research: The Office of Research and Innovation are pleased to invite you to their public lecture on neurodegenerative disease research, with special guest speaker, Professor Lyn Beazley, Chief Scientist of Western Au... |
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Forum: Fundraising & Events Topic: WA up and coming events |
| michelle |
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Posted: Thu Jul 29, 2010 5:27 pm
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Replies: 0
Views: 25
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| Here is some information on some up and coming events: · 27th of August Annual Quiz Night @ Scarborough Sportsmen’s Club $15 per person tables of 10 (see attached) · 4th September Workshop 9.30am – 4pm @ Niche, Nedlands with Jimmy Pollard. The Programme is now finalised (see attached) · Friday... |
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