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mckim77

Join:19.10.2010
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Occupation:Store Manager of Jeanswest
Location:Broken Hill Australia

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Welcome
Welcome to HD Australia This is a community run resource for all Australians affected by Huntington's Disease. We hope you find this a place full of friendship and support.

Recent topic
Recent announcment Recent popular topic Recent topic
Major Drug Deal Announced!!!
SMH 21/3/2013 Living with a time bomb - genetic testing
Disadvantages of DNA testing: letter SMH Wed 9/1/13
Life insurers entitled to DNA results
DNA kits, Insurance SMH Tues 8 Jan 2013
DNA kits - unwanted surprises SMH 7 Jan 2013
PGD Doco - Sun 2 Dec ABC2 9.30pm
New IVF technique to eliminate damaged genetic material
Should PGD IVF be used to avoid passing on genetic diseases?
Women using IVF to screen out cancer (HD mentioned) - SMH
Its my turn....
World Congress 11th-14th September 2011
the time has come
National Conference Program and Registration Form
Please Help With My Daughter
Carlie's Testing Journal
Organized chats
My story so far...
A Day In The Vines! Benifit Concert for HD
on the path to being tested
Re:Future
Missing puzzle piece in family history of HD
scared
Family History Genetic Enquiry
just wanted to say my mum sadly lost her battil to hd
Prayer for the innocent
Sun 2 Dec 2012 PGD doco ABC2 9.30pm
Huntington Disease Magazine
New sections on forum
Telling partners about HD

Latest global announcements
Major Drug Deal Announced!!!
Poster: Jason Fri Apr 12, 2013 12:10 pm

Isis Pharmaceuticals and Roche have announced a multi-million dollar deal to support the development of 'gene silencing' drugs to human trials. This is big news that secures the future of these exciting drugs for Huntington's disease.
http://en.hdbuzz.net/122

Isis press release
http://ir.isispharm.com/phoenix....

Views: 281  •  Comments: 0  •  Write comments Top

Latest news
Insight TV program - Tues 9 Oct - Gene technology
Poster: sonnie Tue Oct 09, 2012 1:04 pm

On SBS ONE, on Tuesday 9 October 2012 at 8.30pm, Insight is scheduled to present a program on Gene Technology.

Views: 787  •  Comments: 0  •  Write comments Top

Stem cells give insights into Huntington's
Poster: Jason Tue Oct 05, 2010 2:30 am

Australian researchers at Macquarie University have done a world first research using human embyonic stem cells, donated by by couples undergoing IVF
http://www.abc.net.au/news/stories/2010/09/22/3019126.htm

Views: 3845  •  Comments: 0  •  Write comments Top

Mental and physical exercise delays dementia
Poster: Jason Sat Sep 12, 2009 7:24 am

http://www.virtualmedicalcentre.com/new ... 013&page=2

Scientists at Melbourne’s Howard Florey Institute have discovered that mental and physical stimulation delays the onset of dementia in the fatal genetic disease, Huntington's disease.

This Australian research opens up new therapeutic possibilities for other dev...

Views: 4458  •  Comments: 0  •  Write comments [ Read all ] Top

HDF raises over $2 Million for research
Poster: Jason Sat Aug 16, 2008 2:35 pm

The Hereditary Disease Foundatation recently held a Gala celebrating its 40th birthday with a tribute to its founder Milton Wexler who recently passed away. The event rased over 2 million dollars with an anonymous donar matching all donation up to a million dollars.

The HDF was started by Dr. Milton Wexler in 1968 when his wife was diagnosed with Huntington's disease (HD). The Foundation uses a variety of strategies - workshops, grants, fellowships, and targeted research contracts - ...

Views: 4839  •  Comments: 0  •  Write comments [ Read all ] Top

Approved drugs found to induce autophagy
Poster: michelle Mon Mar 31, 2008 4:50 pm

HDlighthouse.org
Approved drugs found to induce autophagy



UK researchers have found that several existing drugs which are already approved for other purposes induce autophagy, an alternate way to clear away the HD protein.
Editor's Comment:


Inducing autophagy as an alternate way to enhance the cleara...

Views: 6907  •  Comments: 0  •  Write comments [ Read all ] Top

Enquiries
For all enquiries regarding the forum please contact the HD Australia forum managers
Michelle O'Brien (Forum Manager) michelleo3@bigpond.com
Jason Turnbull (Technical Manager) jason@digiscape.com.au


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Huntingtons Victoria News & Events
  • Tuesday, 14th May 2013- Meet and Greet Meet and Greet! If you are touched by Huntington's disease in anyway, come join the group for lots of fun, advice and support. Where: Huntington's Victoria office When: Tuesday, Read more... (http://huntingtonsvic.org.au/support-us/hv-events-and-diary-dates/246-meet-and-greet)
  • Northern Victoria Support Group Calling community members in Northern Victoria You are invited to join the fun and meet other community members from the Huntington's Support Group Northern Victoria: When: every Read more... (http://huntingtonsvic.org.au/support-us/hv-events-and-diary-dates/259-self-facilitated-support-groups)
  • 2013 Huntington's Disease Charity Gala Ball With the success of the Inaugural Huntington's Disease Charity Gala Ball in October 2012, we are excited to announce that Huntington's Victoria has secured David Bowen, CEO of Read more... (http://huntingtonsvic.org.au/virtual-library/current-news/264-gala)
  • Standard of Care Guidelines on Huntington's Disease The European Huntington's Disease Network (EHDN) Standards of Care Working Group is delighted to announce the publication of a special edition issue of the Journal Read more... (http://huntingtonsvic.org.au/virtual-library/current-news/257-standard-of-care-guidelines-on-huntingtons-disease)
  • September 2013 - World Congress on HD Visit their website (http://www.wchd2013.com/index.php) to register or to find more information about the Read more... (http://huntingtonsvic.org.au/support-us/hv-events-and-diary-dates/240-2013-world-congress-on-huntingtons-disease)

HDBuzz research news
The latest scientific research news from HDBuzz. These links will take you to HDBuzz articles, come back to HD Australia to discuss the news in our forums.
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